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Jul 1, 2024
EULAR 2024
Reflecting on EULAR 2024 For ASIF, the most important part of EULAR is meeting so many people who are passionate about improving the lives of people living with axSpA! Thank you to everyone who visited our booth and found out more about our work. Having the opportunity to talk to rheumatologists and other healthcare … Continue reading "EULAR 2024"...
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Jun 26, 2024
Spotlight on IMAS
Shining a spotlight on the real-life impact of axSpA The Spotlight on IMAS event brought together people living with axSpA, representatives from patient organisations, rheumatologists, researchers, and some of our industry partners. On the eve of EULAR 2024, the Wiener Rathauskeller in Vienna proved the perfect venue to welcome attendees from Brazil to Norway, South … Continue reading "...
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May 31, 2024
Biosimilar Medicines
AxSpA patients were recently represented at a biosimilar medicines patient leader workshop organised by Medicines for Europe. Rene Anour, Chair of the Biosimilar Medicines Working group at the European Medicines Agency (EMA) and Sarah Ikenberry from the US Food and Drug Administration (FDA) (pictured left) heard from ASIF’s Jo Lowe as she shared her thoughts … Continue reading "Biosimila...
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May 31, 2024
World AS Day
World AS Day was a great success with many of our members utilising our World AS Day social media assets. Some translated and personalised them to connect with their local audiences. Others used their own content alongside #WorldASDay2024. It was great to see so many individuals posting about their experiences to raise awareness. There … Continue reading "World AS Day"...
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May 31, 2024
ASIF Council Meeting 2024: Colombia
ASIF members from around the world will gather in Columbia in October for our Council Meeting. We have registrations from all continents and expect this to be the biggest ever meeting of organisations supporting people living with axSpA. All participating organisations will have the opportunity to present a poster and there will be plenty … Continue reading "ASIF Council Meeting 202...
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May 30, 2024
Spotlight on IMAS
Our celebratory ‘Spotlight on IMAS’ reception in Vienna is only days away. The event, the evening before the EULAR congress starts, will bring together our members, industry, healthcare professionals and key stakeholders. ASIF’s new ownership of IMAS is an important milestone and will help to inform ASIF’s future work. IMAS continues to help us understand how … Continue reading...