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Research and science news

Mar 10, 2026

Do Rheumatologists Know About the ASAS-EULAR Recommendations?

  ASAS-EULAR want to know what rheumatologists know about the ASAS-EULAR recommendations for management of axSpA? How important and to what extent are the recommendations implemented in your clinical practice?   Help us to find out what these recommendations mean to them.   If you are a rheumatologist, please take this 5-10 minute survey.   … Continue reading...

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Mar 10, 2026

Strengthening the Patient Voice in Global axSpA Research

  The Assessment of SpondyloArthritis International Society (ASAS) Annual Meeting once again brought together the world’s leading clinical researchers, committed to advancing the understanding and management of axSpA. ASIF works closely with ASAS on a number of important projects and we were proud to be represented at the meeting by Jo Davies, Jo Lowe, and … Continue reading...

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Mar 4, 2026

Austrian Ankylosing Spondylitis Association (ÖVMB)

Written by: Written by Martina Neubauer, Vice President ÖVMB The Austrian Ankylosing Spondylitis Association (ÖVMB) has stood for information, exchange, and support for people living with axSpA, for four decades. In 2024, its 40th anniversary year, the organisation deliberately expanded its role beyond that of a traditional self-help platform and positioned itself as an active … Continue reading "Austri...

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Mar 4, 2026

Difficult-to-Manage Axial Spondyloarthritis

Written by: Professor Antoni Chan, Consultant Rheumatologist and Physician, Royal Berkshire Hospital and University of Reading, UK AxSpA affects the spine and pelvis, causing chronic pain, stiffness, fatigue and reduced quality of life. Many people respond well to modern treatments, such as biologics and targeted therapies. However, a substantial group continue to struggle despite trying … Continue...

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Mar 4, 2026

IMAP: Building the Next Phase Together

Over the past few months, we have been laying the foundations for what will become ASIF’s most ambitious and biggest programme to date , designed to deepen global understanding of both axial spondyloarthritis (axSpA) and psoriatic arthritis (PsA).    Since we first introduced IMAP (International Map of Axial Spondyloarthritis and Psoriatic Arthritis) in the last newsletter, ASIF has been working intensively with academics, clinicians and patients to shape the framework and &h...

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Mar 4, 2026

LAMAS Report to Launch at PANLAR

  The Latin American Map of Axial Spondyloarthritis (LAMAS) will be launched at the 2026 PANLAR Congress (27-30 April) in Panama. LAMAS uses the regional analysis of data from the International Map of Axial Spondyloarthritis (IMAS). The report has been developed with rheumatology and patient expertise from Argentina, Brazil, Colombia and Mexico; it represents one … Continue reading...

read more

Mar 10, 2026

Do Rheumatologists Know About the ASAS-EULAR Recommendations?

  ASAS-EULAR want to know what rheumatologists know about the ASAS-EULAR recommendations for management of axSpA? How important and to what extent are the recommendations implemented in your clinical practice?   Help us to find out what these recommendations mean to them.   If you are a rheumatologist, please take this 5-10 minute survey.   … Continue reading...

read more

Mar 10, 2026

Strengthening the Patient Voice in Global axSpA Research

  The Assessment of SpondyloArthritis International Society (ASAS) Annual Meeting once again brought together the world’s leading clinical researchers, committed to advancing the understanding and management of axSpA. ASIF works closely with ASAS on a number of important projects and we were proud to be represented at the meeting by Jo Davies, Jo Lowe, and … Continue reading...

read more

Mar 4, 2026

Austrian Ankylosing Spondylitis Association (ÖVMB)

Written by: Written by Martina Neubauer, Vice President ÖVMB The Austrian Ankylosing Spondylitis Association (ÖVMB) has stood for information, exchange, and support for people living with axSpA, for four decades. In 2024, its 40th anniversary year, the organisation deliberately expanded its role beyond that of a traditional self-help platform and positioned itself as an active … Continue reading "Austri...

read more

Mar 4, 2026

Difficult-to-Manage Axial Spondyloarthritis

Written by: Professor Antoni Chan, Consultant Rheumatologist and Physician, Royal Berkshire Hospital and University of Reading, UK AxSpA affects the spine and pelvis, causing chronic pain, stiffness, fatigue and reduced quality of life. Many people respond well to modern treatments, such as biologics and targeted therapies. However, a substantial group continue to struggle despite trying … Continue...

read more

Mar 4, 2026

IMAP: Building the Next Phase Together

Over the past few months, we have been laying the foundations for what will become ASIF’s most ambitious and biggest programme to date , designed to deepen global understanding of both axial spondyloarthritis (axSpA) and psoriatic arthritis (PsA).    Since we first introduced IMAP (International Map of Axial Spondyloarthritis and Psoriatic Arthritis) in the last newsletter, ASIF has been working intensively with academics, clinicians and patients to shape the framework and &h...

read more

Mar 4, 2026

LAMAS Report to Launch at PANLAR

  The Latin American Map of Axial Spondyloarthritis (LAMAS) will be launched at the 2026 PANLAR Congress (27-30 April) in Panama. LAMAS uses the regional analysis of data from the International Map of Axial Spondyloarthritis (IMAS). The report has been developed with rheumatology and patient expertise from Argentina, Brazil, Colombia and Mexico; it represents one … Continue reading...

read more

Feb 18, 2026

Project Coordinator / Operations Assistant – New Role at ASIF

Remote | £38,000–£40,000 | Full-time | Fixed-term (18 months, potential extension to 4 years) Join ASIF, working to improve the lives of people living with inflammatory arthritis worldwide. Axial spondyloarthritis (axSpA) is a painful, lifelong inflammatory condition affecting around 1 in 150 people. Despite this, awareness remains low and diagnosis is often delayed. ASIF brings together … Continue reading...

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Dec 2, 2025

IMAP: ASIF’s Pioneering Global Project to Map axSpA and Psoriatic Arthritis

We are excited to share more about the International Map of Axial Spondyloarthritis and Psoriatic Arthritis (IMAP)- a new ASIF initiative that builds on the success of IMAS (International Map of Axial Spondyloarthritis). Why IMAP? IMAS was a landmark study that surveyed over 5,500 patients in 27 countries, providing unprecedented insights into the burden of … Continue reading "IMAP: ASIF’s...

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Mar 22, 2025

The Pursuit of Remission and Improved Quality of Life in axSpA

Join the Global Alliance for Patient Access (GAfPA) and ASIF’s for a webinar highlighting the value of pursuing remission in rheumatic and musculoskeletal diseases. ASIF Trustees Nadia Malliou and Lillann Wermskog, and Jo Lowe, Project Manager at ASIF, will be talking to Neil Betteridge, Strategic Advisor for European Alliance for Patient Access, about axSpA, an … Continue reading "The Pursuit...

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Dec 10, 2023

Approaching the Conclusion: A Glimpse of the End for Ankylosing Spondylitis-Axial spondyloarthritis

Written by Muhammad A. Khan, MD, FRCP, MACP, Professor Emeritus of Medicine, Case Western Reserve School of Medicine, USA This year marks the 50th anniversary of the groundbreaking discovery linking HLA-B27 to ankylosing spondylitis (AS)[1,2]. Beyond HLA-B27, over 116 additional recognised genetic risk factors have been identified, while exploration of environmental factors in this context … Continue reading...

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Sep 11, 2023

The psychological burden of axSpA and the support patient organisations’ can offer to their members

It is becoming clearer that depression and anxiety are prominent among people living with axSpA The European Map of Axial Spondyloarthritis (EMAS) and the International Map of Axial Spondyloarthritis (IMAS) describe how people living with axSpA experience their disease physically, psychologically and socially. Results show long diagnostic delays and a substantial physical and psychological burden, …...

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Sep 11, 2023

Read our report on EULAR 2023

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Mar 7, 2023

AFLAR Conference 2023 Report

Rheumatology a New Dawn in Africa but what about Advocacy? Author Maranda van Dam- ASIF Trustee, Chairperson ASASA South Africa There is a massive lack of rheumatologists in Africa. According to a study done by the ACR in 2015, the ideal ration would be 2:100 000. Africa currently has 150 rheumatologists serving a population of … Continue reading "AFLAR Conference 2023 Report"...

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Mar 6, 2023

Obituary – Prof. Dr. Ernst Feldtkeller (1931 – 2023)

Written by Dr. Muhammad Asim Khan It was with great sadness that we learned of the passing of Prof. Dr. Ernst Feldtkeller at 92 years of age (October 19, 1931 — January 4, 2023). He was truly a remarkable and inspiring person, scientist, and researcher, with a PhD in Physics. He was appointed Professor at … Continue reading "Obituary – Prof. Dr. Ernst Feldtk...

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