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World AS Day 2023!
Thank you to everyone for joining us this World AS Day! We loved seeing everyone engaged, sharing and spreading awareness about axSpA on this special day and we hope to see you again next year!
Remember that you can raise awareness all year, especially this month by joining Walk You AS Off and logging your steps!
You can watch the two Stretch and Move sessions with Jamie and Geoff from Yoga for AS sessions below.
Session 1: Spine and Back
Session 2: Neck and sacroiliac joints
When participating in any exercise or exercise programme, there is the possibility of physical injury. If you engage in this exercise or exercise programme, you agree that you do so at your own risk, are voluntarily participating in these activities, assume all risk of injury to yourself, and agree to release and discharge Yoga for AS LTD and ASIF from any and all claims or causes of action, known or unknown, arising out of these videos.
About World AS Day
Saturday 6 May
World AS Day is an annual day dedicated to people with axial Spondyloarthritis (axSpA).
It is celebrated across the world on the first Saturday of May. Our members and supporters organize activities around the world to raise awareness of axial Spondyloarthritis and related conditions.
Aim of World AS Day
World AS Day is dedicated to people living with axial Spondyloarthritis. AxSpA is a rheumatic inflammatory disease primarily affecting the spine and sacroiliac joints, also called ‘Morbus Bechterew’ in some European countries. It can lead to chronic pain, structural damage and disability.
Raising awareness
AxSpA affects millions of people around the world. World AS Day aims to raise the profile of this disease and increase awareness of the impact it has on people’s lives, physically, mentally and emotionally.
Sharing information
Most people have not heard of axial Spondyloarthritis. On World AS Day, we encourage people to share information about the disease.
Connecting with each other, being together
On World AS Day, connect with others affected by axSpA. Join a virtual/face-to-face event, go for a walk with a friend, react to people’s social media posts or share your own stories with your community using #WorldASDay2023.
World AS Day 2023 Theme
The theme of this year’s World AS Day is - Moving for axSpA
Axial Spondyloarthritis (axSpA) is a chronic inflammatory arthritis of the sacroiliac joints and spine, and movement is as important as medication for those living with this condition. That's why the official theme for World AS Day 2023 is Moving for axSpA. Movement can improve both physical and mental well-being for those living with axSpA. It can help reduce stiffness and pain, improve sleep and increase energy levels. Whatever your ability – from gentle stretching to running a marathon – movement can help your axSpA. Find a physical activity you enjoy and which fits into your lifestyle. Even a few small steps each day can lead to an improvement in symptoms.
Global Digital Events
Together with patient organisations across the globe, ASIF will be hosting and sharing live streams and recordings of movement classes and events that can help you get going and keep moving!
Follow our Social Media channels to stay up to date and visit the site to keep up to date with new events that are being added to the list below.
Hosting an event?
Contact us with all the details via this form and we will add it to the list for eveyone to know and join!
Hosting an event? Contact us with all the details via this form and we will add it to the list for everyone to know and join!
Walker Wednesday
Online Event
Virtual talk
by Walk AS One
Weekly on Wednesdays, 2 pm ET
Walk Your A.S. Off is a community organization that holds “virtual” walk events. Virtual simply means we walk where we live and work without the need to attend any events. We walk not only for our health but to raise awareness of Axial Spondyloarthritis (axSpA) and Ankylosing Spondylitis (A.S.). We track our daily steps and set large collective goals. Our walks bring people & teams together from all over the globe, showing that a small group of people can take great strides to change the world.
Each Wednesday at 14:00 ET, participants and those interested in finding out more, are invited to join the organisers to chat all things walk related.
Jornadas de Convivencia de pacientes y Familiares AEEF
Evento en persona
Talleres Grupos de Autoayuda y ejercicio
by AEEF - Madrid
From 29th April 2023 until 2nd May 2023 at 10:00 GMT+2
Durante las Jornadas de Convivencia, pacientes y familiares realizarán ejercicio y caminata por la EA. Está previsto que llevemos camisetas de la espondilitis para visibilizar la enfermedad a la vez que caminamos por la ciudad
Jornadas de Convivencia de pacientes y Familiares AEEF
Evento en persona
Talleres Grupos de Autoayuda y ejercicio
by AEEF - Madrid
From 29th April until 2nd May 2023 at 10:00 GMT+2
Hellenic League Against Reumatism
Online Event
LIVE WEBINAR "AxSpa Talk to be heard"
by EΛ.E.AN.A.
5th May 2023 at 18:30 EET
During the webinar, speakers will be one rheumatologist, one expert from the Institute for the Safety in the Workplace and two patients with AxSpa while the coordinator will be Mrs. Nadia Malliou, Vice President of HELLENIC LEAGUE AGAINST RHEUMATISM and patient with AxSpa. The webinar includes a Q&A session.
Online Event
LIVE WEBINAR "AxSpa Talk to be heard"
by EΛ.E.AN.A.
5th May 2023 at 18:30 EET
Ankylosing Spondylitis - Let's talk about AS so that we can listen and be heard!
Online Event
Webinar
by EΛ.E.AN.A.
5th May 2023 from 18:30 to 19:45 EET
This is an online event aimed at the RMD community and especially at people living with AS, caregivers and HCPs that work with patients with AS. It's going to be addressing the two main topics of the basics of AS, focusing on living chronic pain and the lived experience of patients.
We will have patients sharing their everyday experience, their unique perspective and their own motivations on how to keep on moving while living with AS.
Anybody who's interested in joining can do it through our FB page (the webinar will be hosted in Greek).
Ankylosing Spondylitis - Let's talk about AS so that we can listen and be heard!
Online Event
Webinar
by EΛ.E.AN.A.
5th May 2023 from 18:30 to 19:45 EET
Tai Chi: Meditation in Motion with Live Demonstration
Led by Dr, Soneka Lee, DPT
Virtual
SAA's 5th Annual Global Spondyloarthritis Summit
6th May 2023
As the premier virtual health event for the spondyloarthritis community, the 5th Annual Global Spondyloarthritis Summit features renowned rheumatologists and other health experts who provide the most up-to-date findings and medically reliable and comprehensive information on essential topics that matter to those living with the disease. Whether you are newly diagnosed or have been living with the disease for years, the Summit is your opportunity to learn tips and tools for managing your symptoms while also connecting with others.
Under the theme “Moving Together Towards Better Health Outcomes” this year’s program features 12 experts from the international community who will discuss topics such as Flares and Possible Triggers; SpA Research Updates; Sleep Issues; Women & SpA; Diet & Nutrition; Surgery & Joint Replacement Recommendations; Cardiovascular Disease, and more!
Tai Chi: Meditation in Motion with Live Demonstration
Led by Dr, Soneka Lee, DPT
Virtual
SAA's 5th Annual Global Spondyloarthritis Summit
6th May 2023
Jornada Divulgativa
Evento en persona
Conferencia
by AFAea - Madrid
6th May 2023 at 10:00 GMT+2
Para esta jornada tenemos previstas 3 ponencias: con profesionales relacionados/as con esta patología:
➡“𝘓𝘢 #𝘦𝘢 𝘦𝘯 𝘈𝘵𝘦𝘯𝘤𝘪𝘰́𝘯 𝘗𝘳𝘪𝘮𝘢𝘳𝘪𝘢”, por 𝐌𝐚𝐫𝐲 𝐂𝐫𝐮𝐳 𝐀𝐥𝐝𝐚𝐦𝐚 (Médico de Atención Primaria)
➡“𝘚.𝘖.𝘚. 𝘐𝘯𝘵𝘦𝘳𝘱𝘳𝘦𝘵𝘢𝘤𝘪𝘰́𝘯 𝘥𝘦 𝘮𝘪 𝘢𝘯𝘢𝘭𝘪́𝘵𝘪𝘤𝘢”, por 𝐌𝐚𝐫𝐭𝐚 𝐑𝐨𝐝𝐫𝐢́𝐠𝐮𝐞𝐳 (Enfermera de reumatología del H.U.B.U).
➡“𝘔𝘪 𝘴𝘪𝘴𝘵𝘦𝘮𝘢 𝘪𝘯𝘮𝘶𝘯𝘪𝘵𝘢𝘳𝘪𝘰 ¿𝘈𝘮𝘪𝘨𝘰 𝘰 𝘦𝘯𝘦𝘮𝘪𝘨𝘰?”, por 𝐃𝐢𝐞𝐠𝐨 𝐂𝐥𝐞𝐦𝐞𝐧𝐭𝐞 (Biólogo e investigador del Hospital Nacional de Parapléjicos).
Jornada Divulgativa
Evento en persona
Conferencia
by AFAea - Madrid
6th May 2023 at 10:00 GMT+2
World AS Day - Cape Town
In-person Event
Walk
by ASASA
6th May 2023 at 10:00 GMT+2
This event is a walk on World AS Day, 6 May 2023 that will take place in Cape Town, South Africa.
The event is centred around the central theme of World AS Day which is "Moving for axSpA". Patients and their support network/families are invited and we will also be inviting some media to the event.
For more information contact Suelita on +27 82 331 4609
World AS Day - Cape Town
In-person Event
Walk
by ASASA
6th May 2023 at 10:00 GMT+2
World AS Day - Durban
In-person Event
Walk
by ASASA
6th May 2023 at 10:00 GMT+2
This event is a walk on World AS Day, 6 May 2023 that will take place in Durban, South Africa.
The event is centred around the central theme of World AS Day which is "Moving for axSpA". Patients and their support network/families are invited and we will also be inviting some media to the event.
For more information contact Ishana +27 84 505 4438
World AS Day - Durban
In-person Event
Walk
by ASASA
6th May 2023 at 10:00 GMT+2
World AS Day - Gauteng
In-person Event
Walk
by ASASA
6th May 2023 at 10:00 GMT+2
This event is a walk on World AS Day, 6 May 2023 that will take place in Gauteng, South Africa.
The event is centred around the central theme of World AS Day which is "Moving for axSpA". Patients and their support network/families are invited and we will also be inviting some media to the event.
For more information please contact Annie +27 82 554 0755
World AS Day - Gauteng
In-person Event
Walk
by ASASA
6th May 2023 at 10:00 GMT+2
World AS Day: Power in Movement!
Online Event
Therapeutic exercises
by Бехтерева
6th May 2023 at 11:00 GMT+3
World AS Day: Power in Movement!
The World AS Day topic, Moving for axSpA, was declared by the International Federation - Axial Spondyloarthritis International Federation (ASIF), of which we are a member. This is not at all unexpected.
People with axial spondyloarthritis (axSpA) and ankylosing spondylitis (AS) can benefit from movement on both a physical and mental level. It can ease pain and stiffness, promote sleep.
Russia joins the international event in which ASIF member organizations across the world will broadcast and distribute recordings of lessons and move sessions as well as live broadcasts of them: https://asif.info/worldasday/
Here you can join yoga classes, Taijiquan and other activities offered by different members of the ASIF International Federation.
The major non-drug method to maintain the patient's functional status and lessen the activity of the disease, in the view of doctors at the V.A. Nasonova Institute of Rheumatology in general and Sergey Kuzyakov in particular, is the therapeutic exercise technique.
Thus, we cordially invite you to participate in the World AS Day and advance together. Participate in the online class, engage in discussion in the broadcast comments, and make new friends who have AS from all over the world!
Expert: Sergey Kuzyakov, therapeutic exercise instructor (higher education)
Moderator: Tamara Letunovich, Chairman of the Saratov office of the “Society for Mutual Assistance in Bekhterev's disease”, movement therapy expert
Join us, practice with us!
In-person Event
Sharing and moving forward by living well with axSpa
by Cyprus League of People with Rheumatism (CYLPER)
6th May 2023 at 16:00 GMT
This event will take place at CYLPER’s premises in Nicosia, Cyprus.
The aim of the event is to discuss how to live well with axSpA and take a positive approach to managing your disease. It is worth coming and sharing with us your concerns and your thoughts. After the discussion, we will focus on simple exercises Gyrokenis as part of the living well idea.
Invite your network and your families.
For more information, please contact at +357 22 428285
World AS Day – Nicosia, Cyprus
In-person Event
Sharing and moving forward by living well with axSpa
by Cyprus League of People with Rheumatism (CYLPER)
6th May 2023 at 16:00 GMT
SpondiloartritI: dalla diagnosi alle possibilità terapeutiche
SPONDILOARTRITI:
dalla diagnosi alle possibilità terapeutiche
Parliamone con gli esperti
⏰ Martedì - 9 Maggio 2023 - ore 18.15
🔴 DIRETTA LIVE sui canali social:
🎯 YouTube - http://www.youtube.com/live/wTvmOWYD6fA?feature=share
🎯 Facebook - http://www.facebook.com/events/622619746388560
Quel mal di schiena un po’ particolare, persistente, potrebbe anche essere il sintomo di una delle spondiloartriti, un gruppo di patologie reumatologiche infiammatorie croniche con la più alta prevalenza tra la popolazione. Si stima, infatti, che gli italiani che ne sono affetti siano tra i 250 e i 400mila. Nonostante questi numeri, però, la patologia non è ancora ben conosciuta e spesso viene diagnosticata tardi, perché confusa con forme depressive, o con altre malattie reumatologiche. E questo accade in particolare per le donne.
❓ Quali sono i campanelli di allarme da non sottovalutare?
❓ Come trattare l’interessamento gastrointestinale, tipico della malattia?
❓ Quali scelte fare a tavola, per contrastare l’infiammazione?
❓ Quali gli strumenti terapeutici oggi a disposizione, dalla cura farmacologica a quella riabilitativa?
Ne parliamo con:
👉 Angela BERTANI
Gastroenterologa - AOU di Modena Policlinico
👉 Ester GIAQUINTO
Dietologa - Ospedale Bufalini di Cesena
AUSL di Romagna
👉 Gilda SANDRI
Reumatologa AOU di Modena Policlinico
👉 Carlo SALVARANI
Direttore della SC di Reumatologia
IRCSS S. Maria Nuova di Reggio Emilia
👉 Margherita SCHIAVI
Terapista occupazionale e Chinesiologo della attività fisica e adattata
AUSL di Reggio Emilia
In-person Event
Class Workshop
Ankylosing Spondylitis Foundation in Colombia
13th May 2023 at 14:00 GMT-5
This event is a Mindfulness, Wellness and Movement Workshop on World AS Day, on May 13, 2023, which will take place in Bogotá, Colombia.
The event focuses on the central theme of World AD Day, which is "Moving around axSpA". Patients, caregivers and family are invited.
For more information, please contact Julieth at +57 3246808858.
Mindfulness, well-being and movement - Bogotá
In-person Event
Class Workshop
Ankylosing Spondylitis Foundation in Colombia
13th May 2023 at 14:00 GMT-5
Workshop Meaningful conversations
In-person Event
Conference - Workshop
Ankylosing Spondylitis Foundation in Colombia
13th May 2023 at 14:00 GMT-5
This event is a workshop aimed at patients, caregivers with the aim of providing tools for self-management of their health and well-being.
Content:
• Provide tools for self-care and self-management of the disease.
• Improve communication skills.
• Knowledge of duties and rights of patients.
• Have effective and meaningful conversations with health providers.
World AS Day, on May 13, 2023, which will take place in Bogotá, Colombia.
Patients, caregivers and family are invited.
For more information, please contact Julieth at +57 3246808858
Workshop Meaningful conversations
In-person Event
Conference - Workshop
Ankylosing Spondylitis Foundation in Colombia
13th May 2023 at 14:00 GMT-5
Key messages
Movement is as important as medication for those living with axSpA
• Movement can improve both physical and mental wellbeing for those living with axSpA
• It can help reduce stiffness and pain
• It can help improve sleep and increase energy levels
• It can help improve your mental health
Different types of movement can be helpful for those with axSpA
• Movement comes in many forms and does not need to be a hardcore exercise
• Finding something you enjoy makes exercising so much easier
• Everyone is different and you need to find the physical activity that works best for you
• Walking is a great form of movement for those living with axSpA and an excellent starting point for many
Getting moving is something everyone can do, whatever their ability
• You don’t have to be an athlete to get moving
• Do things at your own pace, but take care not to overdo it
• If you want to do more, increase gently and build up the time or the intensity
• Remember to stretch before and after your activity
Moving everyday will make a difference
• Find a way to fit some movement into everyday
• Even a few small steps each day can lead to giant leap in improvement of symptoms
• Moving together with friends, family, local groups or neighbors can make it easier and fun
• Adapt your regular movement if you have an axSpA flare up
• Your local axSpA organisation may have online or face to face group activities that you can join
Resources
Following previous year’s campaigns, World AS Day 2023 uses the same dots style to support the campaign. This year the dots are a neon green color.
We encourage you to use these downloadable materials to raise awareness.
World AS Day 2023 logo
Toolkit
Website banners
Social Media Assets
Walk Your AS Off
Get Involved
Be part of World AS Day!
1. Raise awareness by sharing our social media posts, on Facebook, Instagram, Twitter, LinkedIn and Tiktok - remember to use #WorldASDay2023. Feel free to react and duet our content on Tiktok as well! We love to see how creative you can be.
2. Contact your local patient organisation to see what they are planning on World AS Day, get involved and join their events if possible.
3. Join a Global Digital Event - we have created a list of events that people and patient organisations are hosting across the whole world in person and online that you can join! Check out the list here.
4. Host your own event - get involved by organising your own event, share the details with us via this form (see more details in the Global Digital Events section of the website) to be added to the events list and don’t forget to let everyone know on social media using #WorldASDay2023.
5. Download our resources and share the campaign with your local community.
2023 Global Spondyloarthritis Summit
The Global Summit, hosted by the Spondyloarthritis Association of America (SAA), will be held virtually on 5-6 May. ASIF partners with the SAA on this patient-focused educational event. Under the theme “Moving Together Towards Better Health Outcomes” this year’s program features 12 experts from the international community who will discuss topics such as Flares and Possible Triggers; SpA Research Updates; Sleep Issues; Women & SpA; Diet & Nutrition; Surgery & Joint Replacement Recommendations; Cardiovascular Disease, and more! Take a look at the full list of planned topics.
The presentations will be available in English and Spanish, plus some other languages - which will be confirmed nearer the time.
We encourage our members to promote the Global Summit to their membership.
Walk Your AS Off is a virtual walk event that ASIF member organizations may join to encourage their constituents to get moving and raise awareness about axSpA. Walk Your AS Off takes place from 1-31 May. We know exercise benefits people living with axSpA and walking is a great way to keep moving.
Some of your members might choose other forms of movement as their primary form of exercise and that’s fine because steps happen while someone participates in any form of movement and steps can be converted from swimming, cycling, yoga or even gardening!
By joining and creating your virtual team your members may start logging steps at any time. Each Wednesday at 14:00 ET, participants and those interested in finding out more, are invited to join the organisers to chat all things walk related.
The Zoom link is: http://bit.ly/3VEIukM.
Download Walker Wednesday social media assets that you can share.