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axSpA in numbers

Understanding the impact of axSpA on people’s lives

The data generated by IMAS demonstrates how living with axSpA can affect almost every part 
of a person’s life, from physical and emotional wellbeing to decisions about education, work 
and relationships.

You can read in more detail about these impacts in our global IMAS report.

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Total number of participants1,2

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55.4% females (n=3080)

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44.6% males (n=2475)

2 responses did not indicate male or female

Age range:
18 – 87 years

mean = 44 years

Standard deviation:
11.3 years*

*This means that for the majority of patients 
symptom onset occurs between 15.4 and 37.8 years2

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0 Years

Mean age at symptom onset 26.8 years2

75 Years

Healthcare professionals visited before diagnosis:2

  • GP

    77.7%
  • Rheumatologist

    51.3%
  • Orthopaedist

    38.9%
  • Physiotherapist

    36.6%
  • Chiropractor

    12.5%
  • Osteopath

    12.3%
  • Other

    12.0%
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On average, people visited 2.3 healthcare professionals before diagnosis'2

diagnosing healthcare professional:2
7/10
patients are diagnosed by a rheumatologist
Rheumatologist - %
Primary Care Physician - %
Orthopaedist - %
Physiotherapist - %
Other - %
diagnosing healthcare professional at REGIONAL LEVEL:2,3
Select a profession to find out more
Rheumatologist
Rheumatologist
PRIMARY CARE 
PHYSICIAN
Orthopaedist
Physiotherapist
OTHER
Europe
2499
(76.5%)
Asia
323
(53.9%)
North America
511
(66.4%)
Latin America
407
(74.3%)
South 
Africa
102
(70.8%)
Europe
413
(12.6%)
Asia
48
(8.0%)
North America
151
(19.6%)
Latin America
78
(14.2%)
South 
Africa
18
(12.5%)
Europe
187
(5.7%)
Asia
203
(33.9%)
North America
39
(5.1%)
Latin America
42
(7.7%)
South 
Africa
11
(7.6%)
Europe
36
(1.1%)
Asia
11
(1.8%)
North America
20
(2.6%)
Latin America
3
(0.5%)
South 
Africa
0
(0.0%)
Europe
130
(6%)
Asia
14
(2.3%)
North America
49
(6.4%)
Latin America
18
(3.3%)
South 
Africa
13
(9.0%)
Number and percentage of respondents from the region diagnosed by stated specialty
Select an area from the diagram to find out more

On average 
patients experience 
a diagnostic delay* of7.4 years2

* Diagnostic delay describes the length of time from onset of symptoms to a diagnosis

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More than 45% wait 5 or more years for a diagnosis2

Total n = 1652
  • 9.2% experience
    11-15 years delay2

  • 13.6% experience 5-7 years delay2

  • 16.1% experience >15 years delay2

  • 19.7% experience 2-4 years delay2

  • 9.3% experience 8-10 years delay2

  • 32.2% experience 0-1 years delay2

  • 9.2%
  • 13.6%
  • 16.1%
  • 19.7%
  • 9.3%
  • 32.2%

mean diagnostic delay per country:2

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