axSpA in numbers
Understanding the impact of axSpA on people’s lives
The data generated by IMAS demonstrates how living with axSpA can affect almost every part of a person’s life, from physical and emotional wellbeing to decisions about education, work and relationships.
You can read in more detail about these impacts in our global IMAS report.
0
Total number of participants1,2
55.4% females (n=3080)
44.6% males (n=2475)
2 responses did not indicate male or female
Age range:
18 – 87 years
mean = 44 years
Standard deviation:
11.3 years*
*This means that for the majority of patients symptom onset occurs between 15.4 and 37.8 years2
Mean age at symptom onset 26.8 years2
75 YearsHealthcare professionals visited before diagnosis:2
-
GP
-
Rheumatologist
-
Orthopaedist
-
Physiotherapist
-
Chiropractor
-
Osteopath
-
Other
On average, people visited 2.3 healthcare professionals before diagnosis'2
On average patients experience a diagnostic delay* of7.4 years2
* Diagnostic delay describes the length of time from onset of symptoms to a diagnosis
More than 45% wait 5 or more years for a diagnosis2
Total n = 1652-
9.2% experience
11-15 years delay2 -
13.6% experience 5-7 years delay2
-
16.1% experience >15 years delay2
-
19.7% experience 2-4 years delay2
-
9.3% experience 8-10 years delay2
-
32.2% experience 0-1 years delay2
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9.2%
-
13.6%
-
16.1%
-
19.7%
-
9.3%
-
32.2%
mean diagnostic delay per country:2
