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Awareness and advocacy

ASIF has developed this definitive report on the global impact of axSpA diagnostic delay. Our aim is that it will support those working to reduce the delay and be a valuable resource in highlighting the need for change to policymakers and healthcare systems.

The report sets out for the first time a global perspective and the various factors that contribute to it. It also highlights opportunities for overcoming the delay, drawing on different examples of best practice from around the world. The report was informed by the latest available axSpA literature, as well as patient and expert insights from two international Global Forum events held by ASIF in Autumn 2020.

Download Report in English

Download Report in Русский
Download Report in Български
Download Report in Español
Download Report in Norsk

Raising awareness of axSpA and the diagnostic delay

ASIF has created a set of materials for use by us and our member organisations to advocate for change.

This sketch animation raises awareness by highlighting the key signs and symptoms of axSpA, including some of the lesser-known ones. This film will be used to raise awareness with those who may be experiencing symptoms, as well as the broader public.
English (UK)
  • עִבְרִית‎ (Hebrew)
  • Deutsch
  • Tagalog
  • Español Lat Am
  • Norsk
  • Ελληνικά (Greek)
  • Français
  • English (UK)

These infographics has been developed to show the key facts and impact associated with the diagnostic delay and can be used to raise awareness or as a starting point for advocacy conversations. If you would like this infographic translating, please contact Jo Lowe (projectmanager@asif.info).

Click on the images to enlarge them below or use the download button

Awareness and advocacy



You can access three awareness raising films, social media content and other useful tools in our toolkit. It contains:

  • three full length films
    • Sketch animation film - full length and social media short version
    • Me, myself and axSpA film - full length and social media short version
    • Spotting the clinical signs and symptoms of axSpA film - full length and social media short version
  • suggested social media posts
  • social media visual content
  • communications and social media guide

*films avilable in Bulgarian; English; French; German; Greek; Hebrew; Hindi; Norwegian; Spanish; Tagalog.


Please contact Jo Lowe at projectmanager@asif.info to access the toolkit.

The Research



In this video interview, Dr Maksymowych explains why axSpA can be so difficult to diagnose.


Further reading



In this section, you can read the most relevant abstracts and published research papers related to the axSpA diagnostic delay.


  • Systematic review and meta analysis of diagnostic delay in axSpA by Sizheng Zhao et al
  • Eular2020 Identification of Parameters Associated with a Diagnostic Delay in Axial Spondyloarthritis
  • Delay to Diagnosis EULAR 2023 abstract: Diagnostic Delay in Patients included in the International Map of Axial Spondyloarthrtis: Associations with Geographic, Socio-demographic and Disease-related Factors
  • Diagnostic delay in axial spondyloarthritis: a systematic review
  • Diagnostic delay in axial spondyloarthritis - a past or current problem?
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