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Conferences and events news

May 31, 2024

ASIF Council Meeting 2024: Colombia

  ASIF members from around the world will gather in Columbia in October for our Council Meeting. We have registrations from all continents and expect this to be the biggest ever meeting of organisations supporting people living with axSpA. All participating organisations will have the opportunity to present a poster and there will be plenty … Continue reading "ASIF Council Meeting 202...

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Dec 10, 2023

Galapagos Patient Partnership Day

On 15 November, Mike Mandelbaum and Jo Davies from ASIF attended Galapagos’ first ever Patient Partnership Day at their Head Office in Mechelen, Belgium. The one-day event was attended by representatives from around 30 patient organisations mostly representing RMDs, and many Galapagos employees from around the world. On 15 November, Mike Mandelbaum and Jo Davies … Continue reading...

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Dec 10, 2023

ASIF Council Meeting 2024

ASIF Members from around the world will gather in Columbia in October for our annual Council Meeting. IMAS will feature as a central theme throughout the meeting. Presentations, discussions and workshops will include raising awareness among healthcare professionals, emerging therapies and research, and how our members can use IMAS to facilitate their work. One of … Continue reading "A...

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Dec 8, 2023

EULAR PARE 2023 Conference

Mike Mandelbaum and Jo Davies from ASIF attended the EULAR PARE 2023 Conference in Brussels on 16 and 17 November.  This year’s conference was mostly about implementing the EULAR Manifesto Campaign, an advocacy campaign outlining RMD-related policy asks. The manifesto focuses on influencing three policy areas: Quality of care: improving RMD prevention, early diagnosis, treatment, … Continue reading...

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Nov 26, 2023

AGORA Conference

Written by Andri Phoka, President of Agora and Trustee of ASIF AGORA is an umbrella platform representing patient organisations of people with Rheumatic and Musculoskeletal Diseases (RMDs) in Southern Europe. Each year our annual conference takes place in a different country hosted by one of our member associations. This year, the Association for Patients with Rheumatic … Continue reading "AG...

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Nov 26, 2023

Conferences and Events

  Dates for your diary from around the world If you would like your event listed, please email: communicationsmanager@asif.info 2024 MARCH 01-02     Rheumatology Update Europe, Amsterdam, The Netherlands and Virtual 1-4          Emirates Society for Rheumatology Annual Meeting in conjunction with 3rd Gulf Cooperation Council Rheumatology Conference, Dubai 13        … Continue reading "...

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May 31, 2024

ASIF Council Meeting 2024: Colombia

  ASIF members from around the world will gather in Columbia in October for our Council Meeting. We have registrations from all continents and expect this to be the biggest ever meeting of organisations supporting people living with axSpA. All participating organisations will have the opportunity to present a poster and there will be plenty … Continue reading "ASIF Council Meeting 202...

read more

Dec 10, 2023

Galapagos Patient Partnership Day

On 15 November, Mike Mandelbaum and Jo Davies from ASIF attended Galapagos’ first ever Patient Partnership Day at their Head Office in Mechelen, Belgium. The one-day event was attended by representatives from around 30 patient organisations mostly representing RMDs, and many Galapagos employees from around the world. On 15 November, Mike Mandelbaum and Jo Davies … Continue reading...

read more

Dec 10, 2023

ASIF Council Meeting 2024

ASIF Members from around the world will gather in Columbia in October for our annual Council Meeting. IMAS will feature as a central theme throughout the meeting. Presentations, discussions and workshops will include raising awareness among healthcare professionals, emerging therapies and research, and how our members can use IMAS to facilitate their work. One of … Continue reading "A...

read more

Dec 8, 2023

EULAR PARE 2023 Conference

Mike Mandelbaum and Jo Davies from ASIF attended the EULAR PARE 2023 Conference in Brussels on 16 and 17 November.  This year’s conference was mostly about implementing the EULAR Manifesto Campaign, an advocacy campaign outlining RMD-related policy asks. The manifesto focuses on influencing three policy areas: Quality of care: improving RMD prevention, early diagnosis, treatment, … Continue reading...

read more

Nov 26, 2023

AGORA Conference

Written by Andri Phoka, President of Agora and Trustee of ASIF AGORA is an umbrella platform representing patient organisations of people with Rheumatic and Musculoskeletal Diseases (RMDs) in Southern Europe. Each year our annual conference takes place in a different country hosted by one of our member associations. This year, the Association for Patients with Rheumatic … Continue reading "AG...

read more

Nov 26, 2023

Conferences and Events

  Dates for your diary from around the world If you would like your event listed, please email: communicationsmanager@asif.info 2024 MARCH 01-02     Rheumatology Update Europe, Amsterdam, The Netherlands and Virtual 1-4          Emirates Society for Rheumatology Annual Meeting in conjunction with 3rd Gulf Cooperation Council Rheumatology Conference, Dubai 13        … Continue reading "...

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Sep 11, 2023

Read our report on EULAR 2023

...

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Sep 11, 2023

Scandinavian Rheumatology Conference

Spafo Norway attended the Scandinavian Rheumatology Conference (SCR 2023) in Copenhagen in August.  While there, they raised awareness of the challenges facing people living with axSpA, with rheumatologist, health care professionals and researchers. Read their Report  ...

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Jun 8, 2023

EULAR 2023

ASIF booth at EULAR 2023 in Milan, Italy Rheumatologists from Aruba to Argentina, Pakistan to Panama and so many countries in between spoke to the ASIF team about our work and the impact Patient Organisations make to the lives of people living with axSpA. During EULAR, some of the world’s leading researchers and rheumatologists discussed … Continue reading "EULAR 2023"...

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Jun 8, 2023

Member Webinar

The Psychological Impact of axSpA and the Role of Patient Organisations Date: 27 June Time: 14:00-15:00 BST Nadia Malliou will address the emotional and psychological impact of axSpA and how patient organisations can support their communities. Following Nadia’s presentation there will be an opportunity for discussion and to share ideas. About Nadia… “I am a … Continue reading "Memb...

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Mar 10, 2023

Member Webinar

Community/Direct Fundraising     Tuesday 21 March at 18:00-19:00 GMT Fundraising, specifically direct or sometimes known as community fundraising, is the topic of our March Webinar (postponed from February). Liz Marshall will speak about how NASS uses Walk Your AS Off to raise funds. Sean Ewart will discuss the different types of community fundraising that … Continue reading "Member W...

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Mar 7, 2023

ACR Report

  Michael Mallinson attended the  American College of Rheumatology (ACR) Convergence Meeting  in San Diego in November 2022.  He has provided a series of comprehensive reports on key sessions. Thank you, Michael for your commitment to sharing information for the benefit of people living with axSpA.   Click on the reports to read them: ASAS-EULAR … Continue reading "ACR Report"...

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Mar 7, 2023

ASAS 2023 – Annual Meeting Report

At the end of 2022, ASAS (Assessment of Spondyloarthritis International Society) and ASIF signed a Memorandum of Understanding (MOU) to put our relationship on a more formal footing. This MOU means that both organisations will aim to keep each other informed of key plans agree to identify opportunities for collaboration and will contribute expertise and … Continue reading "ASAS...

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Mar 7, 2023

AFLAR Conference 2023 Report

Rheumatology a New Dawn in Africa but what about Advocacy? Author Maranda van Dam- ASIF Trustee, Chairperson ASASA South Africa There is a massive lack of rheumatologists in Africa. According to a study done by the ACR in 2015, the ideal ration would be 2:100 000. Africa currently has 150 rheumatologists serving a population of … Continue reading "AFLAR Conference 2023 Report"...

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