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Mar 7, 2024
Axial Spondyloarthritis Association of South Africa wins Award
The Academic Excellence and Recognition Award was presented to Maranda van Dam, Chair of ASASA during the SARAA Congress 2024. ASASA won a similar award of excellence at the EULAR PARE (People with Arthritis/Rheumatism across Europe) Congress 2022. The SARAA award was based on significant advances made by ASAS towards improving the quality of life of … Continue reading "Axial Spondyloarthritis Asso...
Mar 7, 2024
ReumaZorg
The National Association ReumaZorg Nederland is the national Dutch user-led patient organisation, that strives to make a difference in the lives of people with rheumatic and muscular diseases (RMDs). Having an RMD is a battle against a (lasting) disease, but also against pain, fatigue, loneliness and lack of understanding. Everyday people simply struggle to keep … Continue reading "ReumaZorg"...
Dec 10, 2023
Galapagos Patient Partnership Day
On 15 November, Mike Mandelbaum and Jo Davies from ASIF attended Galapagos’ first ever Patient Partnership Day at their Head Office in Mechelen, Belgium. The one-day event was attended by representatives from around 30 patient organisations mostly representing RMDs, and many Galapagos employees from around the world. On 15 November, Mike Mandelbaum and Jo Davies … Continue reading...
Nov 26, 2023
AGORA Conference
Written by Andri Phoka, President of Agora and Trustee of ASIF AGORA is an umbrella platform representing patient organisations of people with Rheumatic and Musculoskeletal Diseases (RMDs) in Southern Europe. Each year our annual conference takes place in a different country hosted by one of our member associations. This year, the Association for Patients with Rheumatic … Continue reading "AG...
Sep 11, 2023
Scandinavian Rheumatology Conference
Spafo Norway attended the Scandinavian Rheumatology Conference (SCR 2023) in Copenhagen in August. While there, they raised awareness of the challenges facing people living with axSpA, with rheumatologist, health care professionals and researchers. Read their Report ...
