fbpx
find-patient-orgs
find-patient-orgs

About ASIF

ASIF is an international membership organisation representing 56 patient organisations from 45 countries around the globe that support people living with axial spondyloarthritis (axSpA).

ASIF is registered with the Charity Commission for England and Wales.

ASIF’s Vision

A world where everyone affected by axSpA (and related conditions) lives their best life

ASIF’s Mission

To advocate globally to improve the lives of people affected by axial Spondyloarthritis and related conditions. To grow, strengthen and empower our community, and to raise awareness around the world

Our Aim

Everything we do supports our ultimate aim of improving the lives of people living with axSpA

  • Raise awareness of axSpA and its impact
  • Support our members’ work with campaigns, materials and disseminating information
  • Facilitate the exchange of information and experiences within the global axSpA community
  • Support the development of existing patient organisations and the establishment of new associations
  • Contribute to research

Who we are

  • ZHIVKO YANKOV
    Chair ZHIVKO YANKOV Bulgaria
  • LILLANN WERMSKOG
    Vice Chair LILLANN WERMSKOG Norway
  • ANDRI PHOKA
    Secretary ANDRI PHOKA Cyprus
  • DR. TUNCAY DURUÖZ
    Trustee DR. TUNCAY DURUÖZ Turkey
  • CASSIE SHAFER
    Trustee CASSIE SHAFER United States of America
  • DR. UTA KILTZ
    Scientific advisor DR. UTA KILTZ Germany
  • PROF. MARCO GARRIDO CUMBRERA
    Scientific Advisor PROF. MARCO GARRIDO CUMBRERA Spain
  • JO DAVIES
    Assistant Director JO DAVIES United Kingdom
  • JO LOWE
    Project Manager JO LOWE Portugal
  • JOANNE DE BRY
    Communications Manager JOANNE DE BRY United Kingdom

ASIF Council Meeting

Our members and key supporters are invited to our Council Meetings. The Council Meeting is an opportunity for our members to network, share ideas, build new relationships and create opportunities for collaboration, as well as hear about ASIF’s work, participate in workshops and watch presentations from experts in the field of axSpA.

Patient Organisations

ASIF supports our members with the development of resources and creation of programmes that can be localised and used in advocacy, education and awareness raising. We facilitate the sharing of information through our webinar series.

ASIF provides support to people wanting to start patient organisations and offers guidance and advice to fledgling groups. There are still many countries without patient organisations – and we are committed to assisting new organisations grow.

We have developed positive partnerships with pharmaceutical companies working in axSpA and facilitate connections between national affiliate offices and our member organisations.

ASIF Constitution

ASIF is governed by its Constitution, which was adopted on 2 October 2023.

Affiliations

ASIF is a member of the People with Arthritis/Rheumatism in Europe (PARE), a standing committee of the European League Against Rheumatism (EULAR).

Collaborative Partners

Our Supporters

ASIF is grateful to our pharmaceutical industry partners for supporting our work.

novartis
ucb
alfasigma
abbvie
lilly
pfizer
LANGUAGES
Skip to content