Brazil’s 24th Medical-Social Meeting on Rheumatic Diseases

Looking back on our first year of participation in ASIF, we can now proudly say that we are truly part of a global community. We’ve gained visibility, found a strong network to rely on, and created a space where we can share our stories, draw strength and inspiration from one another, and grow together. Being part of this community has empowered us—and continues to do so—as we work to make a meaningful difference for people living with axSpA.

Key themes for patient organisations worldwide

• Patient-centred dialogue: The meeting prioritised the voices of people living with rheumatic diseases, creating a space where patients could ask questions directly to specialists. This openness fostered mutual learning between clinicians and the community.
• The importance of early diagnosis: Several sessions highlighted warning signs for conditions like lupus, psoriatic arthritis, and axial spondyloarthritis, stressing the role of primary care and patient awareness in achieving earlier, more effective treatment.
• Living well with chronic illness: Panels addressed nutrition, mental health, and non-pharmacological approaches such as dance, meditation, and skin care routines—reminders that holistic wellbeing is as crucial as medication.
• Addressing comorbidities: Diabetes, obesity, and cardiovascular risks were discussed alongside rheumatic diseases, recognising the broader health challenges patients face.
• Equity of access: The journey of people with lupus in Brazil underscored global challenges in accessing timely diagnosis and effective treatment, something that is frustratingly shared across many rheumatic diseases.

Reaching wider audiences

The event gained visibility beyond the two days of sessions. Coverage included features in local and specialised media, while Gruparj Petrópolis Institute’s own communication strategy—using newsletters, website updates, and social media—helped drive engagement. On Facebook and Instagram alone, the campaign reached more than 34,000 people and achieved high levels of interaction, amplifying the event’s messages and ensuring patient voices were heard more widely.

A model for others

Dr José Eduardo Martinez, President of the Brazilian Society of Rheumatology, described Gruparj’s work as a potential model for replication across Brazil. This is a great example of how grassroots initiatives can influence national practice—and why collaboration between stakeholders is vital.

Although this meeting took place in Brazil, its themes resonate regionally and internationally. The growing emphasis on patient–doctor partnerships, early detection, and comprehensive care mirrors priorities shared by patient organisations in many countries. The programme also demonstrated how partnerships between local patient organisations, national medical societies, and global networks like Alianza Latina can strengthen advocacy and improve care.

 

 

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