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From Promise to Practice: ASIF at the Biosimilar Patient Leaders’ Workshop & Conference

Prachee Bhosle (pictured centre)

Prachee Bholse at the BioSimilar Medicines Conference,  2026

ASIF Trustee, Prachee Bhosle, represented the Axial Spondyloarthritis International Federation (ASIF) at the Biosimilar Patient Leaders’ Workshop organised by Medicines for Europe on 6 May 2026, followed by the Biosimilar Conference held from 7–8 May in Amsterdam.

Held under the theme “From Promise to Practice: Advancing Patient-Centred Design & Evaluation of Biosimilar Policies,” the workshop brought together patient leaders, healthcare experts, and advocates to discuss how biosimilar policies can better reflect patient needs and real-world experiences.

Sessions explored meaningful patient participation in healthcare policy, the importance of patient-reported outcomes, and how biosimilar policies should be evaluated not only through financial impact but also through patient experience, trust, accessibility, communication, and long-term outcomes.

 The workshop also focused on identifying practical ways to assess policy impact on patients, including the importance of asking the right questions, defining meaningful measures, and ensuring communication is clear and understandable for patients.

 

Key Takeaways for the AxSpA Community

  • Biosimilar policies should be evaluated through a patient-centred lens, not only through cost or utilisation data
  • Patient organisations play an important role in bringing lived experience into policy discussions
  • Real-world evidence and patient-reported outcomes are increasingly important in understanding long-term impact
  • Clarity of roles, accessible language, transparency, and realistic expectations are essential for meaningful patient engagement

Looking Ahead

The workshop and conference highlighted the growing recognition of patient voices within biosimilar policy discussions. ASIF will continue engaging in these conversations to ensure that the perspectives and experiences of the axial spondyloarthritis community remain represented in future healthcare and policy developments.

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