fbpx
find-patient-orgs
find-patient-orgs

Member news

Dec 5, 2024

ASIF Council Meeting 2024: Member Posters

At ASIF we are always working to increase our understanding, from an axSpA perspective, of the differences between countries’ healthcare systems and the often complex social issues that affect people’s health. We are now increasing our focus on Latin America....

read more

Nov 25, 2024

New President for CEADE

It is with great enthusiasm that we inform you that after the CEADE General Assembly held in Cordoba on June 29th 2024, it was agreed that a new Board of Directors would assume the responsibility of the organisation. Marco Garrido, who already served on the Executive Board as liaison with ASIF, has been elected as the … Continue reading "New President for CEADE"...

read more

Nov 25, 2024

Fundación de Espondilitis Anquilosante en Colombia

Since its creation, the Ankylosing Spondylitis Foundation in Colombia has contributed to helping those patients recently diagnosed, guiding, and promoting care to achieve a better quality of life and effectiveness in treatments or medical recommendations. The work carried out by the Foundation is achieved through social networks such as Facebook, Instagram, YouTube, LinkedIn and WhatsApp … Co...

read more

Sep 11, 2024

Improving Access for Patients

The introduction of biosimilars – which are almost identical versions of ‘originator’ biologics whose patents have expired – is changing the prescribing landscape in axSpA. It is helping reduce costs to patients and healthcare systems and, if those cost savings are reinvested in axSpA services, can also lead to overall patient care being improved. In … Continue reading "Improving Acces...

read more

Sep 7, 2024

Bekhterev Norge

  Bekhterev Norge was initially funded as a diagnosis specific part of the Norwegian Rheumatology Association (NRF) in 1986. The aim was to increase the focus and awareness on axSpA within the full set of rheumatic diseases. Bekhterev Norge was established as a separate organisation in 2018. Bekhterev Norge is fully independent from the government … Continue reading "Bekhterev Norge"...

read more

May 31, 2024

Yoga for AS

Geoff and Jamie from Yoga for AS have produced a short documentary to show how the practices of yoga can benefit for people living with AS/axSpA.   Jamie commented, “We hope you enjoy the documentary, and it gives you a dose of inspiration, empowerment, and a sense of community. We are all in this together. … Continue reading "Yoga for AS"...

read more

Dec 5, 2024

ASIF Council Meeting 2024: Member Posters

At ASIF we are always working to increase our understanding, from an axSpA perspective, of the differences between countries’ healthcare systems and the often complex social issues that affect people’s health. We are now increasing our focus on Latin America....

read more

Nov 25, 2024

New President for CEADE

It is with great enthusiasm that we inform you that after the CEADE General Assembly held in Cordoba on June 29th 2024, it was agreed that a new Board of Directors would assume the responsibility of the organisation. Marco Garrido, who already served on the Executive Board as liaison with ASIF, has been elected as the … Continue reading "New President for CEADE"...

read more

Nov 25, 2024

Fundación de Espondilitis Anquilosante en Colombia

Since its creation, the Ankylosing Spondylitis Foundation in Colombia has contributed to helping those patients recently diagnosed, guiding, and promoting care to achieve a better quality of life and effectiveness in treatments or medical recommendations. The work carried out by the Foundation is achieved through social networks such as Facebook, Instagram, YouTube, LinkedIn and WhatsApp … Co...

read more

Sep 11, 2024

Improving Access for Patients

The introduction of biosimilars – which are almost identical versions of ‘originator’ biologics whose patents have expired – is changing the prescribing landscape in axSpA. It is helping reduce costs to patients and healthcare systems and, if those cost savings are reinvested in axSpA services, can also lead to overall patient care being improved. In … Continue reading "Improving Acces...

read more

Sep 7, 2024

Bekhterev Norge

  Bekhterev Norge was initially funded as a diagnosis specific part of the Norwegian Rheumatology Association (NRF) in 1986. The aim was to increase the focus and awareness on axSpA within the full set of rheumatic diseases. Bekhterev Norge was established as a separate organisation in 2018. Bekhterev Norge is fully independent from the government … Continue reading "Bekhterev Norge"...

read more

May 31, 2024

Yoga for AS

Geoff and Jamie from Yoga for AS have produced a short documentary to show how the practices of yoga can benefit for people living with AS/axSpA.   Jamie commented, “We hope you enjoy the documentary, and it gives you a dose of inspiration, empowerment, and a sense of community. We are all in this together. … Continue reading "Yoga for AS"...

read more

May 31, 2024

Your SpAce

The National Axial Spondyloarthritis Society (NASS) has launched new resources for people living with axSpA to get the most out of their medical appointments and navigate their care. Together with people with people living with axSpA and healthcare professionals, they created short information and lived experience videos covering a range of topics in their Your … Continue reading "Your SpAce"...

read more

Mar 7, 2024

Axial Spondyloarthritis Association of South Africa wins Award

The Academic Excellence and Recognition Award was presented to Maranda van Dam, Chair of ASASA during the SARAA Congress 2024. ASASA won a similar award of excellence at the EULAR PARE (People with Arthritis/Rheumatism across Europe) Congress 2022. The SARAA award was based on significant advances made by ASAS towards improving the quality of life of … Continue reading "Axial Spondyloarthritis Asso...

read more

Mar 7, 2024

ReumaZorg

The National Association ReumaZorg Nederland is the national Dutch user-led patient organisation, that strives to make a difference in the lives of people with rheumatic and muscular diseases (RMDs). Having an RMD is a battle against a (lasting) disease, but also against pain, fatigue, loneliness and lack of understanding. Everyday people simply struggle to keep … Continue reading "ReumaZorg"...

read more

Nov 26, 2023

AGORA Conference

Written by Andri Phoka, President of Agora and Trustee of ASIF AGORA is an umbrella platform representing patient organisations of people with Rheumatic and Musculoskeletal Diseases (RMDs) in Southern Europe. Each year our annual conference takes place in a different country hosted by one of our member associations. This year, the Association for Patients with Rheumatic … Continue reading "AG...

read more

Nov 26, 2023

Introducing our new Members!

ASIF has recently gained six new members from Aruba, Brazil, Montenegro, Pakistan, Panama and The Netherlands. We are delighted to introduce Gruparj Petrópolis Institute from Brazil and Arthritis Care Foundation from Pakistan below.    Gruparj Petrópolis Institute, Brazil Written by Wanda Heloisa Ferreira “Gruparj Petrópolis Institute completes 22 years of fulfilling its mission: to educate … Continue r...

read more

Sep 11, 2023

Scandinavian Rheumatology Conference

Spafo Norway attended the Scandinavian Rheumatology Conference (SCR 2023) in Copenhagen in August.  While there, they raised awareness of the challenges facing people living with axSpA, with rheumatologist, health care professionals and researchers. Read their Report  ...

read more

Jun 8, 2023

Member Spotlight: NASS

The National Axial Spondyloarthritis Society (NASS) in the United Kingdom recently launched Your SpAce, which has been created in partnership with people living with axSpA and healthcare professionals. Your SpAce allows people living with axSpA to engage with their condition, learn more about axSpA, and build skills to manage the impact it has on their … Continue reading "Member Spotlight...

read more

LANGUAGES
Skip to content