Month: May 2021

IMAS Wins EFPIA’s Connecting Healthcare Award!

EFPIA’s independent jury chose IMAS as the overall winner from 60 projects

 

“Alongside our partners, Novartis and the University of Seville, I am proud to accept the 2021 Connecting Healthcare Awards – thank you EFPIA. I am delighted that IMAS has been recognised for the significant impact it will have on the lives of axSpA patients. Thank you to all the IMAS partners and the patients who have participated.” – Zhivko Yankov, President of ASIF

The European Federation of Pharmaceutical Industries and Federations’ (EFPIA) independent jury chose IMAS as the overall winner from 60 projects.

By working closely with Patient Organisations, clinicians and researchers, we have gained evidence about how people with axSpA experience their disease, physically, psychologically and socially.

Jo Lowe, ASIF’s Project Manager, and our colleagues from Novartis and the University of Seville talk about how they worked together on this important project.

Thank you to the thousands of patients around the world who have participated in the IMAS project and have helped us uncover the issues that are most important to them.

Here below the first IMAS Video capturing the experiences of real patients and how axSpA impacts their emotional wellbeing and mental health.

 

We are delighted to welcome three new members to ASIF: Hellenic League Against Rheumatism in Greece, the International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis) and Ankylosing Spondylitis  Welfare Society in India.

Hellenic League Against Rheumatism Hellenic League Against Rheumatism was established in 1978 in Athens and today has 7,700 paid members and followers. The league has nine branches in main cities across Greece and enjoys strategic cooperation with​ a number of related organisations. Read more

The International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis) The International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis) helps those who are affected by autoimmune and autoinflammatory diseases – with arthritis as a major early component. It supports them to use their voices – as equals alongside other stakeholders – to solve problems that impact education, advocacy, and research. Read more

 

Ankylosing Spondylitis  Welfare Society (ASWS) Ankylosing Spondylitis Welfare Society is a pan-India organisation formed by AS patients to help support fellow patients. Their aim is to reduce the delay in diagnosis so that axSpA patients are able to enjoy a better quality of life. They are keen to provide emotional support to patients and their caregivers and let them know they are not alone in this new journey in their life. They are determined to get Ankylosing Spondylitis / Axial Spondyloarthritis included in India’s National Insurance, so that no patient suffers due to lack of funds. ASWS want to provide as much financial assistance as possible for patients so that they can realise their dream of living as normal a life as possible. Read more