RESOURCES
This section is for patient organisations, including ASIF’s existing members, and for people anywhere in the world who wish to start a new patient association. You will find useful guidance to support the running of a patient organisation as well as resources used in ASIF campaigns and projects.
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ORGANISATIONAL SUPPORT
Read our guide below on starting a patient organisation, if you are at the beginning of this journey. You can also browse our guides to find support on different elements of running a patient organisation; if you would like to talk to us about getting support, please contact us. You can also read more about how to become an ASIF member.
Guide to Starting an axSpA Patient Organisation
Building your Membership
Creating and Managing a Website
Working with the Pharmaceutical Industry
Fundraising
Communicating with your Organisation's Members
How to make the best use of social media
Advertising on Social Media
Recruiting and Working with Volunteers
Guide to Starting an axSpA Patient Organisation
Download this guide
Building your Membership
Download this guide
Creating and Managing a Website
Download this guide
Working with the Pharmaceutical Industry
Download this guide
Fundraising
Download this guide
Communicating with your Organisation's Members
Download this guide
How to make the best use of social media
Download this guide
Advertising on Social Media
Download this guide
Recruiting and Working with Volunteers
Download this guide
ASIF WEBINARS
The emotional and psychological burden of axSpA and the role of patient organisations
Read more
Community/Direct Fundraising
CAMPAIGN RESOURCES
Here you can find resources from ASIF’s various campaigns and projects; the resources include written information, videos, social media and communications tools, as well as access to publications and axSpA-related data.
Delay to Diagnosis
World AS Day resources
IMAS publications
It’s All Connected
