Fundación de Espondilitis Anquilosante en Colombia

Patients are fundamental in the development of our mission, since we have sought to create a network of patients who multiply knowledge, who through education achieve empowerment for decision-making by making them participate in the responsibility of their care and in what can affect their health status. Likewise, we teach patients to have the ability to prepare their medical consultations in order to improve the doctor-patient relationship and ensure that health care is effective.

It is important that the Foundation seeks to raise awareness in society about Spondyloarthritis, which is an invisible disease in some cases and for which there is a lack of knowledge both in citizens and in the primary health care medical community; thus, through information campaigns in health care centers or public places, we deliver brochures that can raise awareness about a medical condition.

We have the support of stakeholders such as the academic and medical community who value the patient as an important actor in their research, trials, studies and seek to work hand in hand to innovate in pharmacological and non-pharmacological treatments and to have a better understanding of the condition in the patient by analysing the impact that a chronic disease brings with it.

We develop face-to-face meetings for patients, caregivers and family members that have the purpose of knowing and exchanging experiences, learning relevant aspects through the direct interaction of patients and health professionals.

Patient representation is essential before health authorities since policies are changing and it is necessary to have their opinion on those reforms that may affect medical care and treatments. To this end, the Foundation interacts with other patient organisations to defend and voice their needs. Additionally, the Foundation has legal advice in situations of inconveniences in the provision of services as well as in the recognition of economic benefits such disability pensions.

Every day the Foundation is strengthened by the work carried out, generating positive impacts in the community and promoting solidarity among patients. We are grateful to all the volunteers who participate in the development of our work. 

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