Delay to Diagnosis Report Launched

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On 7 July, we held our launch events for our new Delay to Diagnosis report.  We were delighted to welcome patient organisations, patients, rheumatologists, other healthcare professionals, representatives from the pharmaceutical industry and researchers to the virtual sessions.   Attendees from over 20 countries took part in stimulating and valuable live Q&A with our expert panellists.  Thank you to everyone who joined us and who contributed to the thought-provoking debates.

    

We have been overwhelmed by the positive feedback received from around the world. We hope the report is a valuable tool for our members who are advocating for change in their country. Please contact Jo Lowe for support in using the report with stakeholders.

We know this is only the start of a long-term campaign to reduce the international delay to diagnosis. We are working on the next steps and look forward to discussing them with you soon.

We are hugely grateful to Maranda van Dam from South Africa, Annie McPherson from Australia and Kel Arceo from the Philippines for sharing their turmoil whilst waiting for a diagnosis in such an honest and raw way. Their three short films were a highlight of the launch events and have been watched many times on social media and on the website.

Thank you to Raj Mahapatra, ASIF Trustee, for Chairing both launch events, and to our presenters and panellists: Drs Shashank Akerkar, Floris van Gaalen, Dale Webb, Helena Marzo-Ortega, Muhammad Asim Khan and Wilson Bautista-Molano, Annie McPherson, Kel Arceo, Lillann Wermskog, Maranda van Dam and Ricky White, for their unique contribution to the events.

If you would like the report or the patient videos translated, please get in touch.

Read Report

Watch recordings of the launch events

Watch the real life stories

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