Talk to be Heard – New Global Campaign!


New Global Campaign!

Look out early next year for our new global ‘Talk to be Heard’ campaign! The campaign builds on the video released earlier this year for World AS Day, featuring people from around the world talking about the impact of axSpA on their emotional wellbeing.  This video will be refreshed and will be released alongside three new videos of people talking about what they would like to achieve in the future; how axSpA affects their relationships, and the effect on their working life.  The videos show people in nine countries from five continents talking in eight different languages about how axSpA affects them.


#AxSpATalkToBeHeard aims to encourage people to talk about their condition, and how it affects their life beyond their physical symptoms.  We hope the campaign will inspire people around the world to talk more about their disease and that they will find confidence in being part of a global community.  We will also run a global social media campaign, encouraging people to respond on a week-by-week basis to different questions about their axSpA journey.  The campaign can be engaged with on Facebook, Twitter and Instagram, as well as other on and off-line channels. We hope the campaign will encourage people to have conversations with their loved ones and doctors.


The campaign will be hosted on a new ASIF webpage hub.  We will also provide a discussion guide to support people in having conversations about axSpA.  This guide will serve as a tool to help patients openly discuss their experiences and help to define how axSpA affects them and what is important for others to understand.  It will aim to promote meaningful discussions with loved ones and more effective discussions with rheumatologists.


Many ASIF members participated in webinars in November, during which we shared details of the campaign.  With 18 members signed up to run the campaign and materials being made available in 13 languages, Talk to be Heard will be truly global and will highlight the strength and support of the international axSpA community.  We are very excited to launch the campaign in February!


If you would like to run the campaign, it’s not too late to get involved. The materials will be available in: English, Bulgarian, Czech, Danish, French, Greek, Hindi, Lithuanian, Norwegian,

Russian, European Spanish, Latin American Spanish and Tagalog. Please contact Jo Lowe to find out more.


We look forward to working with our members to Talk to be Heard!


Talk to be Heard is part of the IMAS Project.


Talk to be Heard has been developed through a collaboration between Novartis and ASIF.

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