Developing Members’ Resources


This project will provide members with an improved and more cohesive set of tools to assist you with fundraising; governance; lobbying and advocacy; communications and social media, as well as setting up a new organisation. These resources will be supplemented with a range of assets, including a new, digital ‘What is axSpA?’ brochure, guidance on various elements of living with axSpA and provide statistical information on different factors related to the disease.  All of these assets will be readily available to be translated into other languages.

Having now fully defined the project, we are working with an agency to support us designing and writing the new resources.  We look forward to giving further updates and getting your feedback over the coming months.


Please email Jo Lowe with ideas for resources you think would be valuable.

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