Ankylosing Spondylitis vs Axial Spondyloarthritis (AS or axSpA)
ASAS has for some years referred to our group of diseases or conditions as Axial Spondyloarthritis. Many think that the term Axial Spondyloarthritis is more inclusive and covers the full range of people suffering with related conditions.
There is some debate now as to whether ASIF, as an umbrella organisation, should consider changing its name to Axial Spondyloarthritis International Federation. Luckily for us, that means the acronym ASIF would remain the same.
The Netherlands have already made the change to Stichting Axiale SpA Nederland and we know that other patient associations eg NASS are considering making the change.
This also applies to World AS Day – should it be World Ankylosing Spondylitis Day or World Axial Spondyloarthritis Day? Again, the logo would remain the same – World AS Day.
This is one of the issues that we are going to discuss at the ASIF Annual General Meeting which this year will take place in Madrid (during EULAR) on 12 June 2019.
If you have any thoughts about this, please email Jo at email@example.com
With UCB, ASIF has created two new infographics